Osteogenesis Imperfecta Foundation

"Convio has improved our ability to cost-effectively reach people who are affected by osteogenesis imperfecta, and to use our Web site and email communication to provide them with resources. There's simply no better place than our Web site for people affected by OI to get information, make new friends in the OI community, become involved in OI-related events and realize their full potential. And, we're able to reach more people through timely email communications and newsletters, while spending less money on postage and manual labor."

- Heller An Shapiro, executive director, Osteogenesis Imperfecta Foundation

About Osteogenesis Imperfecta Foundation

The Osteogenesis Imperfecta Foundation is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta (OI). OI is a genetic disorder, characterized by bones that are brittle and break easily. The OI Foundation's mission is to improve the quality of life for people affected by OI through research, education, awareness and mutual support. Every month, the foundation responds to more than 700 inquiries about OI with fact sheets, books, cassettes, videos, referrals to support groups and OI clinics and one-on-one support from trained resource specialists.

The Challenge The Solution Results
  • Limited resources for updating static Web site content
  • Small staff not able to make site improvements or manage technology
  • Reaching new and existing constituents was a time-consuming and costly manual task
  • No way for people with OI to easily communicate with each other
  • Required a solution for personalizing email and Web content
  • Selected Convio for content management, online fundraising and marketing, event management and external communication
  • Use online surveys to collect information from users
  • Personalize Web and email content for constituents so it is specific to their interests
  • Manage all event RSVPs and ticketing online
  • Conduct email marketing and fundraising campaigns online
  • Use Tell-a-Friend links in email and on Web site pages to increase viral marketing reach
  • Hosted solution lets staff focus on communication instead of technology
  • More than 250% growth in monthly Web site visitors
  • 46% increase in clinic directory
  • 43% increase in educational material distributed with no extra staff
  • Provides information and resources for board members through secure pages on the Web site
  • Improved level of one-to-one support for those affected by OI
  • One non-technical person now manages the 280-page Web site

Convio solutions used by Osteogenesis Imperfecta Foundation

Learn more about Convio for Health Organizations

Osteogenesis Imperfecta Foundation - Case Study

Visit Osteogenesis Imperfecta Foundation's Web site at www.oif.org

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Osteogenesis Imperfecta Foundation | Convio